#rare disease

Collection of rare disease news, found 11 news.

MPR seeks improvement in early detection to prevent rare diseases

Deputy Speaker of the People's Consultative Assembly (MPR) Lestari Moerdijat has called for improvement in early ...

Medidata Drives Diversity in Clinical Trials, Passing 30,000 Studies and 9 Million Participants

Known for its ground-breaking technological innovations in clinical trials, Medidata, a Dassault Systèmes company, ...

Diagnosis quality can improve rare disorder treatment: minister

By improving the quality of diagnosis in Indonesia, rare disorders or diseases can be treated much better, according to ...

Illuminating the heroes of rare diseases

With a mission of empowering the rare disease community, Illumina has today partnered with medical researchers and ...

Invicro LLC announces Dr. Matthew Silva as new Chief Executive Officer and Dr. Jack Hoppin is named President of Konica Minolta Precision Medicine

- Invicro LLC, a Konica Minolta company, today announces, Dr. Matthew Silva has been appointed as the new Chief ...

Four rare diseases found in Indonesia

Of the 8000 rare disease in the world, at least four were found in Indonesia, namely Mukopolisakaridosis (MPS) type II, ...

Government urged to regulate use of marijuana for health

The Institute for Criminal Justice Reform has urged the Indonesian government to adjust the Regulations of Narcotics, ...

Denis DELVAL is appointed CEO of LFB SA

- On December 20th, a decree from the President of France was published in Le Journal Officiel* appointing Denis DELVAL ...

Montara oil spill victims still awaiting promised compensation

East Nusatenggara (NTT) fishermen who lost their livelihoods by the Montara oil spill in 2009 are still waiting for ...

Rare disease patient flown to Jakarta from West Sumatra

Dora Indriyanti Tri Murni (25), who had been suffering from a rare disease in the last two weeks and under treatment ...

Shire Lends Support to World Rare Disease Day 2011

-     Shire plc (LSE: SHP, NASDAQ: SHPGY), the global specialty biopharmaceutical company, today ...